Speakers 2018-10-16T13:08:43+00:00

Speakers

BeyondRCT

Keynote speakers

Key note speakers

Jeroen Geurts read more >

Bastian Greshake Tzovaras read more >

Juuso Parkkinen read more >

Gaston Remmers read more >

Anje te Velde read more >

Mat Daemen read more >

Jan Houtveen read more >

Maarten den Braber   read more >

(more to follow)

Rapid Fire talks & Panelists

Gerard van Oortmerssen read more >

Rogier Koning read more >

Willem-Jan Meerding read more >

Maartje Niezen read more >

Sabine Wildevuur read more >

Frans Sarisread more >

Eddie van Breukelen  read more >

Tjebbe Tauber  read more >

Workshop holders

Carl Moons read more >

Andre Boorsma read more >

Miriam Vollenbroek-Hutten read more >

Somaya Ben Allouch read more >

Erik Schultes read more >

Wouter Franke read more >

Henk Duinkerken read more >

Wessel Kraaij read more >

Erik Baars read more >

Isolde Besseling read more >

Dennis Zeilstra read more >

Tjitske Bezema read more >

Martijn de Groot read more >

Aletta Kraneveld read more >

Prof. Dr. Jeroen Geurts

The need for a broad scientific methodological repertoire

Contribution to the conference

Bio Jeroen J.G. Geurts, PhD, is professor of translational neuroscience and heads the dept. of Anatomy & Neurosciences at VU University Medical Center in Amsterdam. He is also Chair of the Netherlands Organisation for Health Research and Innovation (ZonMw) and Board Member of the Netherlands Organisation for Scientific Research (NWO).

He obtained a cum laude PhD in 2005 for his research on grey matter abnormalities in multiple sclerosis (MS). His field of expertise is clinical and translational neuroscience, with an emphasis on post mortem imaging. Within this field, he focuses on MS and primary neurodegenerative diseases. Geurts has contributed extensively to the popularization of science through several books, media comments on neuroscience on Radio 1 and 3FM and as director of Stichting Brein in Beeld, a foundation that promotes science valorisation and societal debate. He was elected a member of the Young Academy of the Royal Netherlands Institute for the Arts & Sciences in 2012 and became chair in 2013. He won several awards for his work, among which the Ammodo-KNAW Award (300 k€) for his foundational research on MS. In 2018, he was elected a member of the Royal Holland Society of Sciences and Humanities.

Bastian Greshake Tzovaras

Organizing citizen science in health: the Open humans approach

Contribution to the conference

Bio
Bastian Greshake is the Director of Research of the US-based Open Humans Foundation. With Open Humans he facilitates participatory research projects lead by academic researchers & patients alike. By empowering individuals to take control over sharing their personal data Open Humans wants to put the individual in the driver’s seat of how we do research. Bastian is a biologist-turned-bioinformatician (PhD) with a keen interest in participatory and open science. In 2011 he co-founded openSNP, an open data repository that enables individuals to donate their personal genomes into the public domain. Since then over 4,500 datasets have been donated through openSNP, making it the world’s largest database of its kind. Bastian also mentors the next generation of Open Leaders with Mozilla and serves on the Board of the Open Bioinformatics Foundation.

Juuso Parkkinen

Modern, citizen-centred data stewardship for the common good – why do we have to go beyond the GDPR?

Contribution to the conference

Bio  Juuso is an experienced data scientist, who specialises in statistical modelling and data visualisation. He loves uncovering new insights from messy healthcare data. He has grown a lot of interest in the ethics and privacy issues related to data science and artificial intelligence, and has been actively involved in the My Data Community for several years.

The MyData movement was initiated in Finland in 2012, driven by an urge to find a way out between usability of data and privacy concerns, and has delivered a MyData governance model that serves a diversity of sectors such as logistics, finance, energy, health. Download here the MyData white paper, published by the Finnish Ministry of TRansport and Communications.

The recent MyData 2018 conference in Helsinki gathered more than 600 participants around the globe, including members of academics, business and governments, and active citizens.

Juuso works currently as senior data scientist at Nightingale Health in Finland. The company has developed an innovative blood analysis technology, providing a wide range of metabolomics biomarkers. This technology enables detailed measurement of the effects of lifestyle changes, and the company believes this will be an important factor in preventive healthcare. Juuso has a PhD in bioinformatics and statistical machine learning from Aalto University, Finland.

Gerard van Oortmerssen

Text mining on GIST cancer – making sense of unstructured Facebook-contributions by GIST-patients

Contribution to the conference

Bio
Gerard van Oortmerssen is a survivor of GIST (Gastro Intestinal Stromal Tumor), a sarcoma-type rare cancer. He is chairman of the board of Patientenplatform Sarcomen, the Dutch patient organisation for sarcoma patients. He also is a board member of SPAEN (Sarcoma Patients EuroNet).
He has a professional background in research in digital technology and is presently guest researcher at Leiden University. In 2016 he initiated the Patient Forum Miner project.

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Rogier Koning

Citizen Science on pain management: exploring the challenges and potential of Nobism

Contribution to the conference

Bio
Rogier Koning is a Dutch Clusterheadache Patient (suicide Headaches) and IT-professional who, after 10 years of an intense quest for remediation, has been able to free himself from medication since 1.5 years. He set up his own research group with fellow cluster headache patients, called nobism (www.nobism.com)to search for the best treatments for themselves. The research is based on data collected about the symptoms and treatments every individual member has. The nobism-system can be used by any group with chronic conditions interested in doing its own research.

Dr. Ir. Gaston Remmers

Between heaven and earth: where are we now, 2 years after BeyondRCT-1?  Introduction to the programme 

Contribution to the conference

Bio Gaston Remmers is a healthy Dutchman of 53, yet faced with severe osteoarthritis, heart attack and cancer at a young age. He copes well with it, but is utterly amazed why he is confronted with these issues, despite his lifestyle, that is considered healthy to conventional rules. He asks: what the heck is going on? That is why he joined, in 2013, Inspire2Live as a Patient Advocate, focusing on reducing the incidence of cancer, with food as a major topic. In 2015 he co-founded, together with patients experienced with other diseases, the Platform Patients and Food Netherlands, whose central mission is to empower food as an acknowledged health intervention and prevention strategy, aiming at personalised food.

Gaston organized the first edition of the BeyondRCT conference in 2016. In 2016, he co-founded Foundation Mijn Data Onze Gezondheid (My Data Our Health), of which he is currently the Director. He also serves as Chair of the Board of the Holland Health Data Co-operative.

Gaston has over 30 years of experience in the field of sustainable agriculture, food and societal development, in The Netherlands and abroad. Trained as an agroecologist (MSc) and rural sociologist (PhD), he has delivered transformational projects through his company HABITUS | enabling healthy habitat development. That same spirit and potential of innovation he now brings into the health sector.

Prof. Dr. Carl Moons

Accelerating the uptake of fresh innovations into the care budgeting policies – the Hii Holland approach

Contribution to the conference

Bio Karel G.M. Moons is Professor of Clinical Epidemiology at the Julius Center for Health Sciences and Primary Care, Utrecht University. He is Director of Research in the management team of the Julius Center and heading the research programme ‘Methodology’. Since 2005 he has an Adjunct Professorship at VanderBilt University, Nashville, USA.

Karel Moons studied Health Sciences at the University of Nijmegen and obtained his PhD in Epidemiology at Erasmus University, Rotterdam (Thesis: Diagnostic research: theory and application). After his PhD (1996), he was appointed Associate Professor and subsequently full Professor of Clinical Epidemiology (in 2005) at Utrecht University. He was a Visiting Professor at the University of Virginia, Charlottesville, USA in 2002, and visiting Professor at Tokai University, Japan. He is a member of various research committees, e.g. Netherlands Organization for Scientific Research, Royal Dutch Acadamy of Sciences, the Cochrane Collaboration, and Medical Ethical Committee.

Dr. André Boorsma

Developing a Type 2 Diabetes health data community

Contribution to the conference

Bio  André Boorsma received his PhD in molecular biology at the UvA and works currently as a researcher/consultant at TNO, an independent research organization in the Netherlands. At the department of Microbiology and Systems Biology he studies the relation between nutrition and health. His main focus is on the health data part of human nutritional studies. This includes capturing so-called real world data from wearables and self-tests and save and secure storage and sharing of health data. Andre has a keen interest in patient empowerment by providing them (informed) access to health data. Andre is involved in the personalized nutrition and health program of TNO and Wageningen and is part of the TNO core-team that advices the personalized nutrition start-up Habit.com.

Prof. Dr. Miriam Vollenbroek-Hutten

Research challenges in the era of Telemedicine and mobile health applications: designing BeyondRCT

Contribution to the conference

Bio Miriam Vollenbroek-Hutten is head of research and innovation at ZiekenhuisGroep Twente (Twente Hospital), professor at the University of Twente on the chair Technology Supported Coaching and Training and chairman of the foundation Vitaal Twente. Her research focusses on ICT supported services for diagnostics and treatment for older adults and those with chronic diseases. Her H-index is 29 and she has over 150 peer reviewed papers. Before joining Ziekhuisgroep Twente, she served 22 years as clustermanager at Roessingh Research and Development (RRD).

Dr. Somaya Ben Allouch

Research challenges in the era of Telemedicine and mobile health applications: designing BeyondRCT

Contribution to the conference

Bio Somaya Ben Allouch, PhD, leads the Technology, Health and Care research group at Saxion University of Applied Sciences, the Netherlands. Her research interests are in the areas of adoption and acceptance of ICTs and social robotics in health and wellbeing settings. She is part of the editorial board of the Journal of Ambient Intelligence and Smart Environments and is currently involved in (inter)national funded research projects.

Dr. Willem Jan Meerding

Without context no evidence

Contribution to the conference

Bio Willem Jan Meerding is strategy consultant in health care policy and management. He was senior advisor at the Dutch Council for Health and Society in The Hague and deputy director of Pharos. Previously he worked for the World Health Organization, a pharmaceutical company and in mental health care. He obtained a PhD in Health Economics at the Erasmus University Rotterdam (2004). His main interests are health systems, health care financing and organization, health inequalities, and evidence based practice and policy. As an advisor to the Council for Health and Society, he authored the 2017 report: ‘Without context no evidence: on the illusion of evidence-based practice in health care’.

Dr. Erik Schultes

What data infrastructure and social governance do we need to facilitate Co-operative Citizen Science? Personal Health Train, FAIR principles and the Holland Health Data Co-operative.

Contribution to the conference

Bio Erik Schultes, PhD, is an evolutionary biologist with an interest in data-intensive research questions.  Erik has been affiliated with the University of California, Los Angeles; The Whitehead Institute for Biomedical Research (MIT); The Santa Fe Institute; Duke University Medical Centre and Department of Computer Science. Erik currently holds a visiting researcher appointment in the Human Genetics Department, Leiden University Medical Center, and is International Science Coordinator at the GO FAIR International Support and Coordination Office (GFISCO).

In recent years, Erik has been working with a diverse community of stakeholders to develop FAIR data and services within and outside the life sciences.

Wouter Franke

What data infrastructure and social governance do we need to facilitate Co-operative Citizen Science? Personal Health Train, FAIR principles and the Holland Health Data Co-operative.

Contribution to the conference

Bio Wouter Franke is advisor at Zorginstituut Nederland (ZIN; Health Care Institute Netherlands) and co-responsible for standardization and innovation in the information provision Care & Support. He is involved in various programs and projects within the Healthcare Institute, related to the complex combination of accessibility and security of sensitive care data, big data analysis, blockchain, eHealth, FAIR Data, Personal Health Train and health apps. The main theme of these projects is to develop a sustainable information infrastructure for healthcare, to stimulate modernization in the provision of information and to offer high-quality process support for all parties involved in healthcare.

Drs. Henk Duinkerken

MyOwnResearch: personalization of microbiota management through citizen research

Contribution to the conference

Bio Drs. Henk Duinkerken is initiator of a Nationwide NGO decision makers network focused on data driven innovations. Has 10 years of chairmanship in social housing cooperations. Long before data driven innovations were common, he professionalized the way nonprofit organizations see and grasp new opportunities. He is active in the (tech-enabled) renewal of special transport for disabled people, chairman of the Dutch foundation “My Data Our Health” and co-founder of the Microbiome Center providing patients with personalized microbiome medicine.

Prof. Dr. Wessel Kraaij

What data infrastructure and social governance do we need to facilitate Co-operative Citizen Science? Personal Health Train, FAIR principles and the Holland Health Data Co-operative.

Contribution to the conference

Bio Wessel Kraaij is professor of data analytics at Leiden University and principal scientist at TNO. His main focus is developing personalized health advice systems, using longitudinal health data of large groups of patients and healthy people. Wessel is well connected to the research domain of big data analytics, is a regular speaker about data governance, privacy preserving analytics. He has secured several million euro of funding for ICT and data science research projects related to personal health data and patient generated data. Wessel Kraaij also serves on the Board of the Holland Health Data Co-operative, and is responsible for the selection of a suitable Health database infrastructure.

Dr. Maartje Niezen

Preliminary research findings on changing roles in data management

Contribution to the conference

Bio Maartje Niezen is a researcher at the Rathenau Instituut. The Rathenau Instituut stimulates public and political opinion forming on social aspects of science and technology. She studies how the increased digitalization of health and wellness data affects (perspectives on) the personal responsibility for our health. Maartje worked as an assistant professor at Tilburg University on (inter)national projects about the social and ethical aspects of ICT in the health care domain and lifestyle coaching via mobile health (till early 2017). She obtained her PhD degree at the Erasmus University Rotterdam for her study on the governance of appropriate health technology use and reimbursement and the construction of legitimacy in prioritization decision-making.

Dr. Erik Baars

N-of-one studies in the realm of lesser known health paradigms

Contribution to the conference

Bio Erik Baars worked for 16,5 years as a medical doctor in Internal Medicine and Psychiatry in The Netherlands. He has a Master of Science (epidemiology) and a PhD (curative health promotion). Since 2000 he works part-time as a senior-researcher Healthcare at the Department of Healthcare & Nutrition of the Louis Bolk Institute, Bunnik, The Netherlands. Since 2007 he is also a part-time Professor (in Dutch: lector) of Anthroposophic Medicine at the University of Applied Sciences, Leiden, The Netherlands. He has published ca 230 scientific articles, books and book chapters and other publications.

Dr. Sabine Wildevuur

Citizen driven research

Contribution to the conference

Bio  Sabine E. Wildevuur works as Program Lead for Waag’s Creative Care Lab: the crossroads where (health) care, new media, internet, innovative technology, games, art, society and culture come together. Sabine focuses on this field since her studies in Medicine and Communication Science at the University of Amsterdam.

Waag is Dutch non-profit operating at the intersection of science, technology and the arts, focusing on technology as an instrument of social change, and guided by the values of fairness, openness and inclusivity. Waag’s dedicated team of sixty thinkers and makers empowers people to become active citizens through technology.

Waag is a middle-ground organisation composed of research groups that work with both grassroots initiatives and institutional partners across Europe. The collective has a shared attitude of public concern and civic activism, which is manifested in our public research agenda. Working with emergent technologies, Waag conducts research in both imaginative and practical terms, addressing its fellow citizens from a position of equality and collaboration.

Prof. em. Dr. Frans Saris

Self research by informal caretakers with relatives with Alzheimer’s

Contribution to the conference

Bio Frans Saris is emeritus professor of physics, former dean of the Faculty of Mathematics and Natural Sciences of Leiden University and publicist. During his career, Saris won several physics prizes and was named Knight in the Order of the Dutch Lion. When Alzheimer’s struck his beloved wife, he witnessed her growing anxiety and stress. Faced with her worsening condition, he started experimenting with the food supplement Oxytocin, with remarkable results.

Dr. Anje te Velde

MyOwnResearch: personalization of microbiota management through citizen research

Contribution to the conference

Bio Anje te Velde, PhD, is Principal Investigator at the Tytgat Institute for Liver and Intestinal Research, Academic Medical Center (AMC), part of Amsterdam UMC. She has over 30 years’ of experience in translational immunological research. During these years she developed around her a substantial network of excellent researchers and clinicians in all subfields relevant to this project.  Te Velde investigates immunological aspects of inflammatory bowel diseases (IBD) using experimental models and human material. Her main interest is to unravel the pathophysiology of IBD. The understanding of the pathophysiologic mechanisms involves research of epigenetic alterations, environmental factors and a dysregulated mucosal immune response to the gut microbiota. Te Velde is a board member of the Immunowell foundation (www.immunowell.com) that aims to determine the status of a healthy immune system. She is also secretary of FEDERA (the Dutch multidisciplinary federation of 25 biomedical societies, connecting over 8.000 biomedical researchers). Anje te Velde is also the scientific lead of the MyOwnResearch project.

Dr. Isolde Besseling

‘Doctor, I Have a gut feeling…’: how to bridge the gap between science and practice?

Contribution to the conference

Bio Isolde Besseling-van der Vaart studied Nutrition and Health at Wageningen University. After graduation she worked for one year in Maastricht University to study the impact of probiotics on immune modulation in the small intestine.

Since 10 years she is working for Winclove Probiotics, an Amsterdam-based SME focussed on research, development and sales of multispecies probiotics for specific indications.

In the function of Science Liaison, Isolde is responsible for the initiation, setup, management and valorisation of clinical trials with Wincloves probiotic formulations.

Within the various different indications and target groups, more and more attention is given to the patient perspective and his or her  quality of life. Isolde is, on behalf of Winclove, involved in studies where this aspect plays a central role, and is furthermore focused on how to bridge the gap between science and implementation of probiotics in practice.

Dennis Zeilstra

A fundamental debate: the assumptions behind RCT’s and n-of-one studies in nutrition. 

Contribution to the conference

Bio  Dennis Zeilstra (1979) is interested in the relationship between nutrition and health and wrote several web and scientific articles on this subject. He has an engineering background (University of Twente) and observes a large gap between the status of knowledge in the field of physics and that of nutritional science. He uses an epistemological approach and asks questions like ‘what is knowledge?‘, ‘how do we gain understanding?’, and ‘what do we know about nutrition?‘. By asking these fundamental questions he hopes to contribute to raising the degree of certainty of nutritional knowledge.

Drs. Tjitske Bezema

‘Doctor, I Have a gut feeling’…: how to bridge the gap between science and practice?

Contribution to the conference

Bio Tjitske Bezema is owner of Hidden Health Solutions, which offers a method to learn from the experiences of patients and incorporating this into research projects. Tjitske also is chair of the Immunowell Foundation, a network of people with very diverse backgrounds that experiment with new methods in order to find a solution for chronic immune disorders. Patients, scientists of various disciplines and care providers inspire each other.

Dr. Martijn de Groot

A fundamental debate: the assumptions behind RCT’s and n-of-one studies in nutrition. 

Contribution to the conference

Bio Martijn de Groot (1975) is a medical biologist (MSc) with a background in teaching (MEd) and medical science (PhD).  He has worked for the University Medical Center Groningen, the Premedical University (UMCG) and the Hanze University of Applied Sciences Groningen. His specialism and personal interest lies in the in the ongoing integration of technology and biology. He is co-founder of the Quantified Self Institute and served as its director from 2012-2017. His scientific research and higher education activities include Quantified Self, digital health, and medical science with a focus on personalized science (N-of-1) and self-tracking for health.

Prof. Dr. Mat Daemen

Contribution to the conference

Bio Prof. dr. M.J.A.P. Daemen (1959) is professor of Pathology of Artherosclerosis at Univeristy of Amsterdam (AMC-UvA). He also serves as the chair of the Research Council of Amsterdam UMC. The Research Council consists of 25 members, who together oversee the fundamental and clinical research aspects of all research themes, developing long-term research programmes and monitoring their quality. The Research Council advises the Executive Board of AMC about strategic research policy, including the quality of researchers. The Research Council’s mission is to stimulate excellent research.

Dr. Jan Houtveen

Keynote – Testing single-subject (n=1) effects by collecting intensive longitudinal data

Contribution to the conference

Bio Jan Houtveen is both a psychologist and an engineer, specialized in research on medically unexplained symptoms, the psychophysiology of stress, ecological momentary assessment (EMA), treatment effect studies and single subject dynamic time series analysis.

After obtaining a cum laude PhD in 2001 at the University of Amsterdam for research on the psychology and psychophysiology of stress and medically unexplained symptoms, he worked for 12 years as assistant professor and senior researcher for the department of clinical and health psychology of the Utrecht University (NWO-VENI grant). He has published several scientific papers, book chapters and books on medically unexplained symptoms.

He is currently working part-time as a senior researcher for Altrecht psychosomatics Eikenboom, and, as a freelance researcher, performing intensive longitudinal data analyses for the Wilhelmina children’s hospital of the University Medical Center Utrecht (WKZ), My Data Our Health (MDOG) and the Microbiome Center (MC).

Prof. Dr. Aletta Kraneveld

MyOwnResearch: personalization of microbiota management through citizen research

Contribution to the conference

Bio Prof. Dr. Aletta Kraneveld (MSc Pharmacy & pharmacologist) is full professor of Interdisciplinary Translational Pharmacology at the Faculties of Science and Veterinary Medicine of Utrecht University, and has published >110 papers (H-index: 38). Besides science, she is an active member of several boards of (inter)national scientific organizations (Immunowell, Voeding Leeft, Dutch Society of Pharmacology, EPHAR, IUPHAR, Netherlands Federation of Innovative Drug research).

Kraneveld’s current research interests involve targeting host immune system-microbiome and neuro-immune interactions in chronic diseases with pharmaceutical as well as nutritional interventions. The Kraneveld group is focusing research to in depth study the role of the gut-immune-brain-axis in neurodevelopmental and neurodegenerative disorders that will further enhance our knowledge of the interaction of microbiome with the innate and adaptive immune system and neurons in chronic inflammatory conditions in the gut and CNS. Aletta Kraneveld has set up a program that is a (inter)national neuro-immune platform where academia and industry meet for research on the gut-immune-brain axis as target for medicine and medical food concepts.

Eddie van Breukelen

Keeping kidney functions up and running: from n=1 patient observation to a start-up in personalised kidney food

Contribution to the conference

Bio Eddie van Breukelen is a Dutch kidney patient, who managed to eat himself healthy again. With the experience he gained in his personal journey, he is now creating a business that empowers kidney patients to eat the right food for them: Beterschappen.

Eddie has an MSc in Aerospace Engineering, and founded and grew an internationally operating company that designs, builds and launches small satellites to a team size of 50 people (ISIS)  He is an allround entrepreneur with experience in High Tech (Satellites), Management Consulting (McKinsey) and Food. He currently work ‘in stealth mode’ on new initiatives at the intersection of health, food, technology and behavior change.

Maarten den Braber

Chair

Contribution to the conference

Bio Maarten den Braber is CEO of Nexthealth –  a strategic advisory firm, specializing in digital healthcare. He is former program director of   the Rockstart Digital Health investment fund and accelerator. Maarten co-founded SingularityU The Netherlands (specializing in exponential technology) and Quantified Self Europe (focused on self-knowledge through data). Previously he served as COO of Skylines, a big data company and he organized the first ever Health 2.0 meetup in Europe. Maarten also holds positions as strategic industry advisor for healthcare investment funds and as a supervisory board member for a complex care organization.

Tjebbe Tauber

Big Data and Health: what can a bank contribute?

Contribution to the conference

Bio Tjebbe Tauber works at ABN AMRO IT Service management and is part of the team that organizes the Beyond Banking Days, ABN AMRO’s hackathon. During this three day event, 7 teams of data scientists (modern mathematicians) took on the health challenge. Medical profesionals of Erasmus MC & UMC Groningen worked with data scientists and aimed to predict treatment succes. In his rapid talk he will tell what a bank can do to accellerate cancer research.